A Chronic Pain Journey, then a solution that could help many.

by Harvey Myers
(Clearwater, FL)

Such a story to tell.

I'd like to find someone to collaborate on a documentary film.

I'm a TBI (Traumatic Brain Injury) survivor, but not from the war. In fact the way i came into chronic pain and brain injury and repercussions from it aren't all that unusual, but over 12 years in severe pain, it does yield unusual moments of drama.

I took strong meds to survive the last 9 years of it, then i beat it on my own. One aspect of my story is just how the invisiblity of this kind of issue can affect someone. no disabilty, no help, no good doctors frustrating attempts, test show a little, but they don't show pain.

The fact that I, disregarding my doctors ignorant advice, my 24th doctor, Quite literally on the very day he scoffed at symptoms, i turned to the Internet and found the treatment that in 6 weeks, ended 12 years of pain. I had descended to 2 years homebound at the end. SO it's a tough story.

Recovery for into 8 years now, is also a tough story. It beat up my career, my family and my finances. Over the last 5 years, i've emerged as a well known local musician and gone from having maybe 3 frieds to thousands. Music was a key to restoring my self-confidence. all my selfs had been destroyed and i still wrestle with that a bit.

Yes, and I still wrestle moment-by-moment with TBI issues and some pain. I have a good idea how to medicaly improve it, but that would be another part of the story to evolve, perhaps following me through this incredibly effective treatment.

NeuroCranial Restructuring.

Lastly, the treatment to so profoundly ended my suffering is so little known that it would be, seomthing else again. That treatment could be so helpful to vets who've had head injuries in wars, that i feel compelled to try and reach out with this message. It might challenge some of the traditional thinking.

Remember Galileo.

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Aug 10, 2018
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Response
by: Harvey Myers

To anonymous, from years back. My comment about 24 doctors being ignorant didn't mean they were ignorant, it mean that they really never explored the symptoms, so they were ignorant, specifically, of what I actually needed to treat my pain.

I've not commented in years as nothing changed until recently. Recently, and I don't know why I didn't find this before, but recently I discovered that my symptoms MATCH almost completely with those from a CSF Leak. I had never even heard of such a thing, even though I had long thought there might be CSF Involvement.

The information at https://spinalcsfleak.org/ is new, little was known of the frequency of this problem and so now they are trying to spread the word. I just had an MRI but won't be seen by a neurologist for a few weeks. No one is in a hurry.

I've suffered these symptoms for over 25 years. The first 12 were considerbly worse than then last 13 until the treatment in 2006 reduced my pain and improved my condition in a huge and lasting way, but it didn't elimate other areas of pain. but no one ever explored my strange and numerous symptoms to the point of identifying CSF Leak as the reason.

Diagnosing it is difficult. Treatment is difficult, but some treatment options exist that were unknown to me for 25 years.

Thanks for your interest. I would like to find some way to tell my story for others might find help from it.

Sep 25, 2014
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Documentary
by: Namiq

I would love to take your beautiful story and make it a documentary. If you have not already turned it into one please contact me at therealnamiq@gmail.com if you are interested.

Thank you for sharing your story.

Namiq

Jun 09, 2014
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Response to last post
by: Author

I added this description totally off the cuff. So I would retract that the doctors were generally ignorant. but in my doctor/patient relationship, i ended up with, in the case of one clinic, a list of 11 diagnosis that couldn't have been correct. Post-Laminectomy syndrome when i'd never had a laminectomy. By ignorant i don't mean their knowledge, i mean their knowledge of this patients needs. That was proven when after 12 years of ineffective treatment, the 4 days of NCR relieved the pain 90%. That was 8 years ago, and so the treatment was effective and long lasting. That's the point. When i posted my story, it was not well planned, more of just a brainr dump upon finding this site. So, I should have said with all due respect, they were ignorant of the condition that was at the source of my pain.

Jun 09, 2014
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Attitude adjustment
by: Anonymous

Suggesting that 24 doctors you saw in a row were ignorant is a little far-fetched. His suggest some basic knowledge deficit on your part.
I was interested until I saw how incredibly biased your premise is.

Feb 23, 2014
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Wow
by: Jessica

I think this is an incredible story to tell and a wonderful idea of what you'd like to say with it. I' love to work with you on making this documentary if you are interested still. Contact me via email: jessica.louise.m@gmail.com

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